Lyme disease is definitely no laughing matter. Half of all U.S. counties have Lyme. The CDC gives a conservative estimate of 300,000 new U.S. cases annually. Due to outdated testing with many false-negative results, and a medical community that by-in-large dismisses or fails to understand Lyme, thousands of patients don't get the medical intervention they need to avoid long term chronic illness, which can become fatal. I'm fast-approaching the five year mark since I fell ill and now 21 months into integrative treatment.
My mother-in-law is my antithesis around broaching the subject of health. Even if it has been weeks or months since seeing her, usually she will work something into conversation about her deteriorating health, typically as part of her salutation or she'll just skip by the salutation altogether and dive right into complaining about her health. It's extremely off-putting. As the recipient of this information, I try to look engaged when I really just wish she would stop talking and leave me alone.
Here I am, also ailed, and finding it difficult to welcome her complaints nor bestow gracious empathy. My mother-in-law also does very little to support her own health, which I struggle to comprehend. So perhaps my story of confusion around how she falls short of dealing most effectively with her illness clouds the space I give her to unload on me.
I'm quite the opposite of my mother-in-law around the subject of my personal health. I've made a habit of not bringing it up to my friends and family. Here are a few of my reasons:
Foremost, forget politics, I get the sense a person's health is one of the all-time most taboo subjects. I'm sure there are myriad reasons for this. I sense among my peers illness and mortality are generally not topics most of us are ready to openly embrace, especially those like me who are middle age. Like religion, for example, our finite being in this world is very personal as much so as every individual's felt sense of purpose. I can certainly appreciate this, and yet I find it quite curious. Is this unique to American culture? How does American culture deal with the subject of illness and mortality differently than other cultures? Which culture deals with these subjects most gracefully and holistically? My inquiring mind wants to know.
Secondly, people want to talk about subjects they're interested in. Most people are not interested in hearing about your health, and that's perfectly OK.
Third, in the case of my illness in particular, it has seemed to me to have gone on for so long many of my friends have forgotten that I am still sick. Some have said they aren't sure whether it's something I'm comfortable discussing. When someone says that, I believe they're actually projecting their own discomfort in hearing about my illness back onto me. Touche and lame. Art makes people uncomfortable all the time, and yet there's still a place for it; we can still value it.
The other night my husband and I were out to dinner with another gay couple we've known for years. One of them works in the health care industry. That night I was really struggling with breath shortness, my most loathed of all my symptoms. During such times I find it really difficult to be part of the conversation, virtually any conversation. Talking can be physically laborious for me when this symptom flairs.
Toward the end of our meal my breathing eased. I made mention of it only to explain why I wasn't contributing as much to the conversation. Something along the lines of having some breath shortness, that it has subsided otherwise I would have been more talkative. I received blank stares in response, a clear social cue to change topic. Even though both of our friends know what I've been grappling with over the years, there's never a check in about how I'm doing. More than half of my other friends check in out of care, and that feels kind to me.
Everyone is different, and I'm sure there are those out there living with chronic or terminal illness who are uncomfortable discussing it with others. My mom is one of those people who doesn't like people knowing about her stage four lung cancer and only talks about it with select people. For me personally, I appreciate being acknowledged for what I must endure to continue making it in the world.
Yes, we all have our daily struggles of putting food on our tables, etc. Those struggles in my life have not been replaced during the last five years with my struggles to recover my health. No, they've only further compounded my burdens. The only thing that has really changed is my physical aptitude to meet challenges day by day. For this, it would be nice to have a little more understanding, if not empathy, from others.
There's a great quote: "Be kind, for everyone you meet is fighting a battle you know nothing about." -Wendy Mass
Posts
No comments:
Post a Comment